Jesy Nelson shares lifechanging moment she is told of twin's SMA diagnosis

Jesy Nelson has shared the emotional moment she was told about her twins’ spinal muscular atrophy (SMA) diagnosis.

The former Little Mix star said her “whole life has changed” as she broke down in tears at the news.

After being born prematurely, Ocean Jade and Story Monroe were kept in hospital for three months. Nelson revealed earlier this year that they have both since been diagnosed with SMA.

Since receiving the news, Nelson has been advocating to have mandatory testing rolled out across the UK and a new series shows her fighting to change UK newborn screening laws.

Sharing the trailer on Instagram for her new Amazon Prime documentary Jesy Nelson: Life Changing, she wrote: “I’m really not sure where to start with this one… All I can say is that I urge everyone to watch this documentary. It’s the most heartbreaking series I’ve ever had to make, but it’s one that needed to be made if we’re ever going to see real change.

“This is only a small glimpse into what my girls have to go through every single day. It’s the reality that so many children born with SMA have to endure and this is only the beginning of their lives.

“I truly hope this helps people understand why the heel prick test and treatment from birth are so incredibly vital. Early diagnosis can change EVERYTHING. I’ll keep saying it until no family has to experience this again: no future babies born with SMA should have lives that look like this.”

Speaking to the camera while crying, Nelson then said she felt like she was “going to feel heartbroken for the rest of my life”.

One clip in the trailer shows the moment the singer was told about her daughters’ diagnosis, holding back tears before she said: “I can’t believe this is happening.”

“My whole life has changed… I don’t know how we are going to do this,” she is then heard saying.

The series has been billed by Prime Video as a “raw and powerful” look at Nelson as she “comes to terms with the diagnosis”. / Credit: Instagram/@jesynelson

“They could have been able to walk and run and live how a child should live. That’s the part I’ll never be able to accept,” she added when speaking about her daughters’ conditions.

The documentary series has been billed by Prime Video as a “raw and powerful” look at Nelson as she “comes to terms with what the diagnosis means for her girls, adapts to the everyday challenges of their conditions, and finds her footing as a single mother after the break-up of her relationship”.

Nelson welcomed her daughters with now ex-fiance Zion Foster in May last year.

According to the NHS, SMA causes muscle weakness, movement problems, issues with breathing and swallowing, muscle tremors, and bone and joint problems.

Nelson has since been campaigning for the condition to be added to the newborn blood spot screening test as early treatment can help avoid some of its most devastating effects.

Jesy Nelson: Life Changing will be released on July 17 on Prime Video.