Parents of little girl with Spinal Muscular Atrophy face £7,000 bill

The family of a three-year-old girl with a rare muscle disease are facing a bill of £7,000 for adaptations to their home.

Grayce Pearson, from Glasgow, has a condition called spinal muscular atrophy (SMA) – a genetic neuromuscular disease that causes progressive muscle weakness.

She uses a wheelchair and has faced several health challenges in her short life because of it.

Parents Carrie and Tony previously told STV News that they “feared the worst” when Grayce was first diagnosed.

Grayce was diagnosed at 14 months. Supplied

At around six months old, she stopped being able to kick her legs or sit up on her own – a diagnosis of type-2 SMA followed.

Grayce and her family are part of the reason SMA is now part of the heel prick test in Scotland.

The family now face paying around £7,000 for adaptations to their home, which will help Grayce live more independently as she grows.

Grayce with her parents, Tony and Carrie. Supplied

They require a ramp outside the house, as well as a chairlift to carry her up the internal stairs.

A GoFundMe page started for the family by friends reads: “Our goal is to raise funds to provide a ramp and stair lift for Grayce, which will make the world of a difference to the family.

It adds: “This will mean the world to us and the loveliest family to come together as a community and help them over the coming years by giving them this wonderful support.”

You can view the fundraiser for here.