People living with what’s thought to be the most common genetic connective tissue disorder in Scotland are waiting on average 20 years for a diagnosis.
Ehlers-Danlos Syndromes are a group of life-long conditions that affect tendons, ligaments, blood vessels and organs.
Campaigners are raising awareness at Holyrood in a bid to encourage a better pathway to care as it’s estimated around 20,000 people are living with the condition.
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