The parents of a schoolboy with a rare muscle wasting condition say they’re in a race against time to get approval for him to undergo treatment that could significantly slow the disease.
Sam Millar from Edinburgh has Duchenne muscular dystrophy – roughly 100 boys in the UK are diagnosed each year.
A new drug could prove a game-changer for the eight-year-old and the other 100 boys in the UK diagnosed each year.
But it’s yet to be approved for NHS use.
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