There are calls for a campaign to test all new-borns in Scotland for a rare debilitating condition which affects an estimated 1 in 10,000 babies in the UK.
It’s not possible to cure Spinal Muscular Atrophy, but treatments are available to manage symptoms – although the longer the condition is left untreated, the more severe it can get.
Follow STV News on WhatsApp
Scan the QR code on your mobile device for all the latest news from around the country